Author Archives: msyahn

ePatient Benefits for the Unconvinced Physician

When discussing ePatients, we’ve mostly talked about the patient perspective – how an individual can become more empowered, educated, electronics savvy, etc. – but what about the physicians?

Well, in interacting with ePatients, of course the physician themselves may also learn information they hadn’t known, learn to empathize more with the individuals, and even gain some tech skills in the process. These all sound great, but sometimes when a doctor is over worked and just plain tired from life, I’m sure the last thing they are thinking of is how to learn how to use a new app a patient has just brought in.

The culture of passive medicine is in part carried out by physicians’ attitudes towards such patients. Of course, if your patient is compliant to everything you say and doesn’t question any of your prescriptions or treatment notes – you’re life as a physician isn’t too difficult because everything is a one-way conversation. But with the incorporation of ePatients – the physician has to work to build that two-way relationship, which not all physicians are willing to do.

So for those physicians unconvinced by the new ePatient movement – how about a very concrete and quantifiable benefit? EPatients can help you make money.

Now this sounds a bit crude. Money should not be the core of medicine, but sometimes it is and to some people it is. And in this sense, ePatients can bring in money for physicians by increasing physician referrals.

It has been shown that referrals are most effective through word of mouth. If a previous patient likes the way you work, then you get a referral. It’s just that simple.

Now how do ePatients factor in? Well, if you think about the grand scheme of things, creating an ePatient means a closer relationship formed by the physician and patient by methods of direct and indirect communication. This communication should ideally make the patient feel more secure and welcome in the portion of the healthcare system you have introduced them to. So simply (and idealistically) speaking, you put in effort to be a more engaged doctor in the patient’s life and treatment plan, and eventually they will like you and get you referrals.

Now, all doctors should communicate with their patients because medicine is not just about the biological treatment, but the social and psychological treatment as well. Social aspects of physician-patient interactions can go a long way. But – if you are still not into this ePatient thing – then maybe take into account how the ePatient movement can factor into your business plan. Is it a little more appealing now?

Look Pretty, Work Pretty

There are countless resources and reputable medical journals out there in the world that would provide patients with everything they need – information from how to tackle the seasonal flu to managing side effects after being injected with ketamine for surgery. There are countless brochures, booklets, and instruction manuals that guide patients through critical information at any point during a treatment process.

But – the problem is, these don’t get read. It is the standard “tl;dr” – too long, didn’t read – phenomenon.

Health literacy is apart of the issue, but the visual impact of the message is critical as well. After 15 weeks of using research and feedback for creating an ePatient intervention in the Medial Media Arts Lab – it has come to be blatantly obvious that design can be what makes or breaks a product. Sometimes, visual attractiveness will win over efficiency.

Looking through different infographics and flowcharts about the healthcare system, I came to stumble upon the Robert Wood Johnson Foundation’s Visualizing Health project. This project attempts to help healthcare providers chose the best method for displaying health statistics in a manner that will be easy for the health consumer to understand.

Their main gallery tool – Wizard – displays a whole database of images that you can choose from depending on what type of information you are trying to convey. You can select from a wide variety of images and read information about what specific factors made that particular image powerful, and how successful it was in conveying the information it set out to address.

Here are a couple examples:

This website is a great resource for students and professionals alike, and can very well be applied to areas outside of health and patient care.

Communication is key to any service job, and especially to medicine because sometimes healthcare providers and their consumers just seem to speak two different languages. To play the cliché – a picture is worth a thousand words – the right picture in the right scenario just might be the intervention we need to push patients to be a little more engaged, educated, and involved in their treatment.

Passive medicine is easy to find, but through resources like these and new technologies incorporating the patient more into healthcare decisions, we are slowly but surely overriding this attitude. If patients feel more confident in the way they are able to accept and understand information, they should feel more confident walking into the physician’s office and conveying their opinions about clinical treatment. Passivity is the first thing to break when trying to bring about new engagement in patients, and if pictures are the answer – then let’s get drawing!

Developing SciFi: The Medical Tricorder

Have you heard of the medical Tricorder? It’s the fictional device used in the Star Trek universe to instantly diagnose disease without any invasive procedures. This space gadget seems like it could be pretty useful, but it isn’t real. Or is it?

In 2011, a non-profit organization focusing on technological development, X Prize, and the wireless telecommunication company, Qualcomm, organized the Qualcomm Tricorder Competition, inviting scientists world wide to turn the fictional medical Tricorder device into the next real health-tech breakthrough. The winner is to develop a hand held device that will diagnose patients better than or equal to a panel of board certified physicians.

The ultimate goal of this competition is to develop a device that will provide instantaneous medical feedback for an individual’s health status without any invasive procedures or trip to healthcare facilities. This, in theory, would give individuals direct access to health data as well as full control over how, when, and where they receive care.

This science fiction idea seems radical in that it is trying to condense the entire primary care physician’s job into one handheld device. With the development of devices such as the lab-on-a-chip, maybe the technology does exist that this device may not completely be out of reach. However, is it right to outsource such a huge task to a little phone screen? Even if such computerized devices give rise to better diagnostic outcomes than the 55% (as reported by the Qualcomm competition website) met by human physicians, is it right to shrink medicine down to statistics and algorithms?

Of course, even if this device is to be made, more invasive procedures will probably continue to be done in hospital – but that being said, I would like to believe that there is more to medicine than just providing a diagnosis. The new technology (again, in theory) will be able to gather health metrics to raise concerns for a specific diagnosis, but full patient context should be understood before making health decisions.

The medical tricorder may be perfected to be used as a supplementary medical device for those willing to purchase such a device – but this should never replace a doctor’s visit. The organizers for this competition provide the rationale that people more often than not must seek a healthcare professional in order to receive any type of direct medical care, creating an inefficient healthcare system that is out of reach for those who actually need it.

Although the concern brought up by the Qualcomm and X Prize is certainly valid, creating technology to replace doctors to an extent seems to be a bit extreme. Many studies have definitely shown evidence that increased physician-patient interaction correlate with better outcomes. Just from personal experience in research, I have seen the large positive placebo effect on patients just from being able to talk to a professional.

Patients who are going to the doctor out of concern for personal well-being are going to go to the doctor regardless of what a machine tells them. Those that are going to be persuaded not to go are those that probably wouldn’t have gone unless the symptoms were truly bothersome anyway – so in a sense – we aren’t really getting anywhere with this.

Sometimes, what the patient needs is genuine attention from the HCP, not an analysis of story-less numbers and figures. Technology can always be a great supplement, fulfilling biological human needs, but not enough to fulfill personal human needs.

ePatient Sketch

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A lot of things go into being an ePatient, but through working on helping more patients transition into ePatients, I have come to realize it is not just the individual that creates the ePatient, but an ePatient team. It is the individual that must digest all the information as his own; however, the empowerment can just as much come from the support group of physicians and caretakers (family, friends, etc.) that give this individual the motivation to seek empowerment and to claim empowerment as his own.

Looking Into ePatient Outlets: PatientsLikeMe

As a continuation of my first blog post discussing CrowdMed as a possible ePatient outlet, defining the movement with a community of curious patients and a medically educated crowd base, this time I will focus on PatientsLikeMe to provide a different approach.

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PatientsLikeMe is a free public website that provides a patient, clinician, or caretaker to register and provide, receive, and share health information. Users are able to input symptoms, medications, and treatments to find people undergoing similar medical situations. Communication is facilitated through both a forum type infrastructure and user comments.

Individuals are able to search the information database for not only patients with similar symptoms, but also for a wide range of medications and treatment opportunities for a particular condition. Treatments can be searched based on frequency of use amongst patients, user rating, efficiency, and side effects.  In addition to medical and pharmacological solutions, users can browse through dietary, physical activity, or mindfulness treatments suitable for their personal needs.

In addition to acquiring a wide range of helpful information, the website allows people to track their health and invite others (doctors, family, friends, etc.) to their “care team” and share the status of their health. The tracking information can be easily be shared with those not on the website through an easy print format which the individual can choose to print or email to someone else.

The website automatically stores the shared health history to a database to match the user up with pertinent clinical trials or be used for research.

Different from CrowdMed, this ePatient outlet is geared towards personalizing one’s involvement in sharing and receiving health information. The website is structured so that all information provided by other users is easy to understand even with low health literacy.

PatientsLikeMe is very attractive in that everything from health tracking to research can all be done under one website. With the ease of having access to variety of resources in one spot, the site is able to lower some effort barriers that may restrain patients from transitioning into ePatients.

This ePatient outlet definitely highlights the empowered definition of the entire ePatient movement, giving the individual full control over their involvement in how their personal health information gets used and how they themselves act to provide for others within the virtual community. Involved users are not only free to educate themselves with healthcare options that can easily be discussed with a physician, they are, in addition, given the chance to take their health into their own hands with clinical trials and nonmedical treatments such as wellness exercises and stress management.

Clipart Illustration of a White Person Holding His Arms Out With

If CrowdMed is a helpful resource for finding answers under the ideology of “power in number”, PatientsLikeMe is the example of self-driven medicine with an interface chosen by the user’s preferences. This is a great illustration of patient empowerment, as patient empowerment is not only choosing what to be involved in, but choosing the threshold of involvement as well.

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