Reliability in Self-Tracking: Why it is Less Important than we think

During our final critique last night, many of the comments of our proposed app addressed concerns about the reliability of patients’ self-tracking information. In other words, will a patient honestly report that they have taken their medications and followed their exercise and diet plan for that day?  Most comments acknowledged that we could link our app to different programs such as a Fitbit, a Nike fuel band, and prescription refills to monitor whether a patient was actually fulfilling their treatment plan. These modifications would provide objective data that the patient is following through with their treatment plan.

fitbit

source: medgadget.com

While these modifications would definitely streamline the process of providing correct information, I think they miss one of the most valuable aspects of self-tracking. Since I our app, the patient has to check off which aspects of their treatment plan they followed during the day, it automatically forces them to reflect on their day and their progress in achieving their goals. If the information automatically syncs to the app, it eliminates a crucial step in the goal setting process, which is reflecting on your current progress in achieving your goals.

goal

source: newyearresolutions.org

The problem can be viewed from two different perspectives: the patient perspective and the physician perspective. From a physician’s perspective, it is extremely useful that the automatically recorded data would provide objective findings on a patient’s progress. A physician could see that a patient is only running once every two weeks from the information provided in a fit bit or other device. It reduces the need for the physician to rely on accurate self-reporting by their patients. From a patient’s perspective automatically reported data reduces time spent self-tracking, but it ultimately doesn’t make the patient more engaged in their treatment plan and illness.

If we move towards an app that relies less and less on patient self-tracking it also moves away from a collaborative physician-patient relationship. The goal of our app is to create a shared-decision making tool that can be used at the clinical encounter. We wanted to move away from the historical physician-patient relationship which is very unidirectional. In this model, the physician tells the patient their treatment plan, and the patient follows that treatment plan. The purpose of self-tracking is to have the patient track their health to make them more engaged and better able to manage their condition. If we remove the physical process of entering in information, we risk losing patient’s engagement and thus decrease a patient’s responsibility of their own health.

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Opposing Philosophies of Action

Recently I had a brief meeting/discussion with a doctor from the Texas Medical Center who conducts research in the realm of public health. We met so that I could receive feedback on some health-related software that I had developed for a class. Among the many things I learned during the conversation, there was an intriguing observation that I perceived: software engineering methodologies for creating a solution are philosophically different than the techniques the doctor was employing, and the methods I was learning about in class.

http://upload.wikimedia.org/wikipedia/commons/6/6c/Agile_Software_Development_methodology.jpg

Source: Wikipedia

In software development, one of the core principles is to operate continually, using an loop of building software and getting feedback. This is absolutely necessary in the world of software where goals, technologies, and requirements change at dizzifying rate. The answer to the speed of software was to use a set of adaptive and flexible methodologies, often referred to as “Agile” practices.

http://i.stack.imgur.com/aexha.gif

http://i.stack.imgur.com/aexha.gif

The method on the other end of the spectrum is to engage in research that results in a deep understanding of users and the solution domain. Rather than prototype quickly and get feedback, the idea behind user-centered design is that users are sufficiently understood so that when it is time to design, prototype, and evaluate, time spent will be more efficient and effective because there is a solid understanding of the stakeholders and their environment. This is effective in most situations, because the assumptions are not changing even while one is prototyping.

In reality, the methods are not too far apart from each other, as they both operate in iterations that contain similar elements. However, there is an important philosophical difference; in the two figures, user centered design places the main elements in a circular loop while agile development reinforces the continual and parallel nature of the processes. This is only because of the ridiculous speed of the software industry. But in the end, each party at both ends of the spectrum could take notes from each other. A healthy balance of user-centered design combined with fast prototyping and quick iteration cycles would provide an approach that is both responsive and precise.

Promoting Patient-Centric Adherence: Emerging mHealth Technologies

Last night we had our final Medical Media Arts Lab presentations—a bittersweet culmination of all of the hard work we as a class have put forth throughout the semester. My group finally had the opportunity to present a detailed plan and accompanying visuals detailing our mobile app solution for improving patient-doctor communication regarding shared treatment plans for Type II diabetics. Professionals in the audience gave us some very valuable feedback and suggestions, which, should the project continue, would greatly improve our existing design and the user experience. Our app focuses on improving patient adherence by creating shared treatment plans that take both the patient and doctor’s needs into consideration. To enhance our design, it was suggested that we add a reward component that provides positive feedback to patients who follow their treatment plans, as well as include an avenue for patients to socialize in an effort to increase motivation and accountability. I assumed that these were components our team would need to develop; however, it turns out that mHealth startups have already started to explore these possibilities, both within the context of diabetes, and for chronic and other health conditions in general.

I came across these emerging businesses on the mHealth News website, outlined in an article entitled “Startups bolster adherence via social networking, mobile apps.” Ayogo and Get Real Health “offer a care coordination platform and mobile application, respectively, that seek to improve on…abysmal adherence statistics.” I was particularly interested in Ayogo, which utilizes a health behavior change and gamification platform called GoodLife to establish meaningful social interactions between patients, patients and their family members, and patients and their doctors around their health condition.

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The platform also utilizes psychological triggers and secondary applications to personalize the user experience. The specific mobile app used by Ayogo is called Empower, which “helps patients who are newly diagnosed with a chronic condition to take control of their treatment.” The app organizes the patient’s treatment plan into a ‘health habit curriculum’ that uses behavior change principles, self-reporting, social interactions, and a rewards system to encourage adherent patient behavior.

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The app tries not only to engage patients in their prescribed treatment plans, but also to actually establish new habits in the patient’s daily life by having them complete small activities or games each day that both facilitate the patient-reward system, but also help the program tailor to the patients’ needs. By actively engaging patients with the app through games, rewards, and social features, Empower, and more broadly Ayogo, helps patients improve adherence to their treatment plans.

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It seems that the only missing component is the facilitation of real-time patient-doctor communication about the treatment plan. This app offers what to me seems like a brilliant, innovative proposal to a problem common across nearly all chronic health conditions; however, our development offers that extra, crucial component addressing the in-person patient-doctor encounter. As we move forward, app developers should remain open to learning and growing from the work of other startups. Mobile health is a rapidly growing field that offers much opportunity for profit and competition. However, let us not lose sight of the key stakeholder—the patient. As the race for the next innovation commences, we need to make sure that all possibilities are considered, collaboration is encouraged, and innovation is allowed to reach its full potential.

http://www.mhealthnews.com/news/startups-bolster-adherence-social-networking-mobile-apps

http://ayogo.com/index.html

Conspiracy Theories Come to Life

If I were to ask you to name someone in your life that is described by the word eccentric, who comes to mind? Everyone has someone in his or her life that blurs the line when it comes to sanity, and can be described, for a lack of better words, as a little bit “off their rocker.” For me, that person is my grandpa. A high spirited and extremely social old man, he is constantly calling me to talk to me about his garden, to rant about the latest University of Arkansas sporting event, or to remind me that I need to cover up the camera on my laptop because the government is using it to spy on me. While his slightly paranoid notions constantly amuse me, I’ve begun to see how some of today’s advances in science appear to be a bit out of this world. The constant innovation and development of new technology has provided tools for medicine that seem like they belong in a sci-fi book or the ranting’s of a conspiracy theorist.

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One such example is a technology that has the possibility to revolutionize the way we approach medicine. In many of the projects presented in class, students brought up issues of patient adherence to treatment plans as obstacles in designing a solution. Teams provided examples of having no way to check or confirm if patients were taking their medication and if so were patients doing so consistently, at the right time, etc. So, what if we could eliminate this problem of adherence to a medication plan all together?

A group of researchers at MIT are trying to do just that.

This team has designed a microchip, about the size of a scrabble piece, that can be preloaded with medication and implanted into the body with the option of being programmed to administer drugs at a given time, interval, and dose. This allows patients freedom from the burdensome medication schedules they usually adhere to, and gives doctors the ability to theoretically adjust or stop medication dosage remotely. Proven to be safe and effective in a study done in 2012, the company, microCHIPS, hopes to continue to improve the chip in order to be able to have it turn on and off remotely and improve structure of that hopefully it could remain in the body and deliver medication for up to sixteen years.

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What implications does this innovation have on the future of medicine? First and foremost it offers the possibility for major improvements in the treatment of chronic illness that require constant medication and treatment. Having a built in system that eliminates a lot of the human variable of adherence provides the opportunity for more consistent care and better health outcomes.

The microCHIPS also present a variety of possible resources in preventative medicine. For example, can implanting a chip in a person at a high risk for allergic reaction be beneficial and effective further down the line when an emergency ensues? The possibility of arming high-risk patients against future potential medical problems increases opportunities for improvements in preventative care.

As we move forward in our examination of this product we are left with a variety of questions:

What other implications or applications could microchip produce?

 Also, what possible complications, both medical and social, could arise from implanting a microCHIP with medication into the body?

 

Sources: http://www.cnn.com/interactive/2014/04/health/the-cnn-10-healing-the-future/?frame=1&hpt=he_c1

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